Showing posts with label Carly. Show all posts
Showing posts with label Carly. Show all posts

12.15.2016

Two & Through!!!


This little cutie turned two back on October 25th! It's hard to believe it has already been two years since she joined our family. She has completely changed our lives for the good and has taught our family the true meaning of love.


The "Through" part of the post title is there because this little girl is off TPN!!!!  You have no idea how much I've been looking forward to finally being able to say that! WAHOO!!!

A few weeks after her birthday on November 8th, I noticed there was a small leak in her line as I was unhooking her from her TPN in the morning and flushing her line. Leaks in TPN lines are no good because they can lead to an infection, so she and I took another fun (yes, I'm being sarcastic) trip to the E.R. up at Primary's. For some reason they seem to know Carly very well there...ha! As the IV team examined her line, it became totally occluded and wouldn't flush or draw blood back due to the leak, so they knew it would absolutely have to be pulled and replaced with a new line. Since Carly has been progressing so well and has been SOOO close to coming off of TPN anyway (she was down to 10 hours of TPN every other day), I asked them to please consult her GI doctor, Dr. Jackson, before they replaced the line to see if he'd be okay with just pulling it out and seeing how she does. Otherwise, they'd be putting a new one in that would most likely end up being pulled in a month or two anyway, which would waste an access site (sites where central lines can be placed are limited so I was really concerned about that). He reviewed her labs, charts and weight gain, and agreed she was doing well enough to finally come off TPN. Yay!


So they partially sedated her and then the surgeon came in and yanked the line out. As I sat there and watched them remove her line, I couldn't help getting a little emotional. That line has been such a HUGE part of our lives for the past two years. Caring for that darn thing has been the hardest thing I've ever done. But that line is also what saved her life and has kept her alive for the past two years. I am so grateful for it but at the same time so glad to be done with it!

I also thought about the many long, serious discussions we had with the NICU doctor's about Carly's future after she lost her intestines. They all agreed that because she was missing the most important parts of her small intestine (all of the ileum, most of the jejunum, and her ileocecal valve) that she most likely would need to be on TPN for the rest of her life. And here I was, just two years after they told me that, witnessing the removal of the line they told me she'd never be able to live without. I knew as I watched the surgeon remove the line that I was bearing witness to a miracle. We have truly witnessed God's healing power in the life of our little Carly. There isn't a day that has gone by since she joined our family that we haven't prayed for her intestines to recover/adapt enough to be able to get off TPN. Bryson and Lilly have been praying all year that she'd be able to get off her TPN by Christmas and their humble, sweet prayers have truly been answered!

Carly still has a G-tube button in her tummy, which we run hydration fluids and feeds through on occasion, but I'll take a feeding tube and everything that goes with that over TPN any day! She's still on numerous vitamin and mineral supplements and will remain on those throughout her life to help prevent deficiencies that she'd have without them. She'll continue to have frequent lab draws throughout her life to keep everything in check. She'll always struggle with staying hydrated, and still has MAJOR poop issues, which will hopefully get better as her intestine continues to grow and adapt... but I cannot even begin to tell you how much easier life has been without TPN! It has been SO WONDERFUL and such a gift! Oh, and she can FINALLY take real baths and go swimming, which has been so fun for her!!!


It's has now been over a month since Carly came off TPN, and she's still doing so great! At her follow up appointment with Dr. Jackson on November 21st (which was also the same day Mike landed in the ICU...boo!), she had lost a little weight, which I was really worried about, but Dr. Jackson said that is typical after coming off TPN and didn't seem at all concerned about it. They will be watching her weight closely throughout her life, but lucky for us Carly eats like a maniac, so hopefully she'll be able to start packing on the pounds so she won't ever have to go back on TPN! Since coming off TPN, she has seemed excessively hungry and thirsty and has been eating SO MUCH food and drinking TONS of her specialized nutritional formula. You would not believe how much food & formula this girl can pack down! She still sticks to a strict high protein/high calorie/high complex carbohydrate/no sugar diet to help her remaining intestine function as optimally as possible. We also include cooked veggies even though her body doesn't digest/absorb them very well (they come out looking just like they went in...sorry if TMI...ha!), but she still loves them, especially broccoli!

She's been working with a speech pathologist over the past few months because her speech is a little delayed and she has a few behavioral issues that we are working through, but given all she's been through in her life, she really is progressing and developing remarkably well!

She truly is a walking, living, breathing miracle and it has been such a gift to witness God's power working to heal her little body. The power of prayer is real!

Since Carly is a HUGE David Archuleta fan, and because this song testifies of the power of prayer, I had to share. :)


Favorite quote this week:

"Believe in miracles. I have seen so many of them come when every other indication would say that hope was lost. Hope is never lost."

-Elder Jeffrey R. Holland

Life rules!

7.22.2016

The Infection


I guess Carly missed the nurses & doctor's at Primary's so much that she decided she wanted to spend a week visiting them! She went her entire first year without getting a single infection and then has gotten hit with three in the past 10 months! No fun.

Last Tuesday Carly wasn't acting quite herself and started running a low grade fever throughout the morning that I was watching closely. Later that afternoon, as Carly was waking up from a nap, her nurse came to draw routine labs and take her vitals. When he took her temperature, it had climbed to 103°, which when you have a central line means an immediate trip to the ER. So I drove her up to the ER at Primary's, they drew cultures which ended up being positive for a very pesky intestinal bug called enterococcus, and she had to be admitted.


Carly is especially susceptible to infections because along with missing most of her small intestine, she is also missing her ileocecal valve, which is the valve that prevents bacteria from the large intestine from entering the small intestine. So because she doesn't have that valve, bacteria can easily travel up into her small intestine (called bacterial overgrowth) where it can then be absorbed into blood stream. With healthly people if a bug like that gets into your blood stream, your body can usually fight it off pretty easily, but because she has a compromised immune system due to her illness, bugs like that just hang around and this one found it's way into her line (the foreign object in her body) and ended up making her really sick.



Since it's the 3rd time she's had that same bug in her line, they ended up having to pull out her line, which is a big bummer because there are only so many places that lines can be placed. When you've used up all of your available access sites, then it becomes problematic because you no longer have a way to receive your life saving TPN. If you still need TPN to survive and you can't get it due to lost access points, then you can become eligible to be placed on the intestinal transplant list. If transplantation can't happen quickly enough, then hospice measures are put in place. Our doctor's have always done everything they could do to save Carly's lines, but since the same line kept getting infection after infection with the same bug, the safest thing to do at this point was to pull it. Without a line in, they couldn't run her TPN while she was inpatient and so she ended up losing 1 1/2 pounds during her stay. Carly is currently on her 3rd line.


While doing an echocardiogram to search for an available access site for her new line, they found a blood clot in the internal jugular vein in her neck. According to her infectious disease doctor, bacteria like enterococcus LOVE blood clots and like to settle in and make their home there, and that's exactly what this one did, which means that we have to do prolonged antiobiotic therapy at home (4 weeks this time instead of 2 weeks) in order to clear the bacteria out of the clot. I was concerned about there being a clot in her neck, but the doctor's said the risk of the clot dislodging and causing issues is extremely minimal and that the body will naturally break the clot up with time.

As soon as they started the antibiotic (ampicillin) in the hospital, Carly's stool output increased like crazy (this always happens when she's on antiobiotics). She was losing so much fluid in her stool that she became extremely dehydrated and lethargic so they had to keep pumping her full of specialized IV fluids to try to counteract her high fluid loss. They finally got everything back in balance, but in the meantime it was heartbreaking to see her so lethargic and feeling so lousy.

Her surgery to have her new line placed went well except that they had a really hard time waking her up after because her blood sugar dropped so low during surgery. Normal is 80-100 and hers dropped to 44. Her heart rate dropped down to 54 (normal is 80-130). They got her hooked back up to an IV and after 1 1/2 hours she eventually came to, but in the meantime it very nerve-racking.


She's home now and doing well. We are still battling constant dehydration due to her high stool output (around 10 very liquidy blowouts a day), so her nurse has been coming to draw her labs every few days so her GI team can keep adjusting her TPN to keep all of her levels in check. Carly pounds down tons of Pedialyte when she's off her TPN to help keep her hydrated.


Now that she's home, we have to run the antiobiotic through her line every 6 hours. Each dose takes 30 minutes to complete. The antiobiotic comes in these little pods that we hook up to the line on her chest and then we have it hang out the back of her so she doesn't play with it. We have to run this 4 times a day for 4 weeks.


She was so adorable when she got home and you could tell by the smile on her face and her cute giggles that she was beyond delighted to be home.


Carly looks like a deer in headlights in this photo, but I still love it because it shows how much Lilly loves Carly and how happy she is to have her home. Bryson and Lilly both love her to pieces and are so sweet with her!

Frequent hospital stays have become a part of our new normal. They aren't fun, but we've accepted them as part of our new life and have grown pretty accustom to them. We are so grateful for all of our family and friends who always so willingly step up to help us during those times.

Favorite quote this week:

"Some things may never get better, but your ability to deal with that problem will improve."

-Wayne Kirk

So true. Life rules.

7.06.2016

...and We're Back.

Yes, we are still alive. Life has just been a crazy, crazy roller coaster around here lately. I'll post an update about everything the family has been up to soon, but in the meantime, I wanted to give a quick update on Carly's progress.


It's been over 8 months since my last update about her, so there is a lot to catch up on. First of all, Carly is now 20 months old and weighs just a smidge under 20 pounds. At our recent clinic visit, her GI team was thrilled with her weight gain and dropped her TPN (IV nutrition) from 7 days a week to 5 days a week with 2 days of hydration via her g-tube. This means that we run her TPN through her Broviac (the IV line that goes into her chest) for 12 hours, 5 nights a week, each of which delivers a days worth of calories & nutrition to her body through her bloodstream. On the two night's she's off her TPN, we run a hydration fluid (aka: Pedialyte) into her tummy via her g-tube to keep her hydrated while she's off her TPN.


In addition to Carly's TPN and specialized baby formula, Carly eats a high protein, high calorie, no sugar diet. This type of diet helps her remaining intestine absorb as much as possible and helps reduce the risk of intestinal bacterial overgrowth, which she's at a very high risk of getting. So she eats a lot of eggs, lean meats, fats (for added calories), complex carbohydrates, cooked veggies, and doesn't eat anything with sugar in it, including fruit. Trial and error is teaching us what her body can and cannot digest and tolerate. If a food comes out looking exactly like it went in (this happens a lot), then we know her body can't digest it and that it's not a good food to feed her and/or if it causes her diarrhea to worsen, then again, it's a food we need to avoid giving her.


Based on Carly's food intake, output, and weight gain, her GI team estimates her intestines are working at about a 50% efficiency, meaning they absorb 50% of what she eats & drinks. So in order for her to gain weight like a normal person, she would have to eat twice as much food as a normal person would. Feeding her twice as much food in order to get her off the TPN sounds like a simple solution, but if she eats that much food, it causes her to dump (aka: poop a TON...like it all just comes right out) because she is missing so much of her intestine, so it's counter productive to do that. So instead, we allow her to eat as much as her body will tolerate by mouth (right now that consists of about 70% of her total calories), then the TPN makes up the remaining 30% of the calories her body needs to grow and thrive. As the percentage she eats by mouth increases and her intestines continue to adapt and absorb, the TPN will be gradually decreased until her body has proven it can thrive without it. The day her line is finally removed will be a very happy day!


This is Carly's nightly concoction of meds, TPN, and feeds. If I prep this all by myself, it takes me around 45 minutes to prep everything you see on the tray and then another 20-30 minutes to get her hooked up to everything and to give the meds. When Mike and I tag team it, we can get everything prepped and hooked up to her in about 30-45 minutes, which is pretty good time.


Carly can't go swimming, but she can take an occasional bath as long as we are really careful to protect her central line & dressing from getting wet. So we cover her dressing with Glad Press'n Seal wrap and then tape the edges with tape to prevent the dressing from getting wet. She can then play in an inch or two of water for a little bit, which she loves.

Being on TPN sometimes stinks because it means you get sick a lot and have a lot of hospital stays. Carly can go from running around as a happy, energetic, mess-making toddler like this:



...to not eating, running a fever, being lethargic, and just wanting to be held in a matter of just a few hours.


When she gets like that it's very concerning because it could mean she's developed a line infection. We monitor her temperature very closely when she is like that and have to head to the ER if the fever ever hangs out above 100.4 degrees because line infections can become life threatening very quickly.


Unfortunately she developed her very first line infection about a week after her first birthday back in November, which required a 5 day hospital stay. She was then sent home on 3 antibiotics, which we had to run through her Broviac (the IV line in her chest)--the first one (Ampicillin) every 6 hours for 20 minutes, the second one (Ciprofloxacin) every 12 hours for 40 minutes, and the third one (Vancomycin) we had to keep locked in her line when the others weren't being run through it. We had to run each of those several times daily for 2 weeks straight, so it made it really tricky to leave the house during that time. Antibiotics completely destroy her already destroyed gut which exasperates her diarrhea and doubles her already heaping pile of daily poop soiled laundry...


Yes, that right there is one day's worth of Carly's laundry: 3 crib sheets, 3 blankets & 9 outfits all covered in diarrhea. Yummy.


Her 2nd line infection happened the end of April, so we enjoyed another 5 day, 4 night stay on the exotic 3rd floor of Primary Children's. The nursing staff and doctor's there have come to know Carly well. Carly enjoys growling at them...ha! They again sent her home on a similarly scheduled concoction of antibiotics, which we ran through her Broviac (the chest IV) and then they placed a PICC line in her arm, which is where we ran her TPN through during those 2 weeks while the Broviac was being treated for the infection.

She's been doing so great since her last infection and really is progressing so well. She has an occasional set back or emergency situation here and there, but for the most part, she is doing phenomenally well.


Developmentally, Carly is walking (started around 18 months old) and can say mama, ba-ba, ball, up, uh-oh & dada. We call her "destructo baby" because she is constantly running around the house destroying everything. Here's a clip of when Carly first learned how to climb up stairs (in December)...


And a clip from when she learned how to climb down the stairs (early June)...


Carly is an amazing little girl who I know is on a special errand from the Lord. Part of that errand has been that of changing my heart as her mother, though I believe she has more work to do than just that. It takes great sacrifice and a complete loss of self to care for Carly. But in doing so, I have witnessed the great blessings and joy that come through sacrifice. Through Carly, I have learned the complete necessity of relying on our Savior. I feel His hand on a daily basis giving me the strength and support necessary to do the things that are required of me. When I feel I can go on no more (which is often), His grace and atonement carries me. Our family is learning greater patience, humility, charity and faith. We are being molded into far better people because she is in our lives.

Favorite quote this week:

"Worrying doesn't take away tomorrow's troubles, it takes away today's peace."


Life rules!






10.27.2015

Carly's 1st Birthday



I am a firm believer that fortune cookies always come true! On August 26, 2014, I opened a fortune cookie that said, "A small lucky package is on its way to you soon." Two months later, on October 25th, a very small 2 lbs. 4oz. package came into our lives and changed it forever. We feel so beyond lucky to have been chosen to be Carly's parents. It is hard to believe she is already one!

Here are some photos from her special day:

We had a special dinner to celebrate Carly's birthday and invited all of her family and two birth families to attend.


This little girl seriously has so many people in her life that love her, support her, and pray for her.


This adorable outfit is one that Lilly wore on her 1st birthday and Carly looked every bit as adorable in it.



Carly is crawling around like crazy, so Mike added wheels and a cord to a little plastic bin so she can pull around her TPN with her wherever she goes. She is loving the new found freedom to explore it has given her!


Carly with her cute cousin Oakland.


Carly got spoiled with lots of cute clothes, toys, books and diapers. 


Mike and Ike even got a special gift...hehe!


Carly's little gut can't tolerate any sugar, so she got to enjoy a sugar free birthday cake (it was actually quite yummy!)

 Happy birthday sweet Carly! We sure do love you!

Health Update:
Carly is doing AWESOME! Her new G-tube has made a world of a difference! She now weighs 14 pounds! Her dietitian has been ecstatic with her weight gain and just called to tell me that we can reduce her TPN from 21 hours a day down to 18 hours a day, which means she can be free from her backpack for a whopping 6 hours a day...wahoo! Since the G-tube was placed, we've also seen improvements in her liver enzymes and they are almost back within the normal range, which is so great! Her liver biopsy did show TPN related liver damage, but the good thing about that is that once she gets off of the TPN, the liver should be able to eventually heal itself.

They did a blood test to determine the absorptive function of her remaining intestine (serum citrulline). Studies have shown that a serum citrulline >19 means that you'll be able to get off of TPN more quickly. Carly's citrulline is at an 11, so that indicates it may take her a little longer than we were hoping for her to get off the TPN, but every one is different, so we are praying it will still end up being sooner rather than later.


"Be kind to unkind people. They need it most."
-Ashleigh Briliant 

Life rules!

10.13.2015

Carly's Surgeries

This past Thursday we had a very eventful morning! I went to get Carly out of her crib in the morning and found her lying in a pool of dried blood with her TPN leaking everywhere. I immediately knew her line somehow broke during the night, so I frantically searched to find where the break was. We are super diligent about securing the line to her pajamas at night to prevent this very thing from happening, but somehow she still managed to break it! Broken lines are an emergency because they can cause life threatening infections. So after finding where the break was, I hurried and got the line clamped off, changed her out of her blood & TPN soaked clothes, threw her (figuratively) and my emergency to-go bag in the car and raced off to the emergency room up at Primary Children's. Because the blood was already dry when I found her, I feared we might be dealing with a clotted line, which would mean surgery to pull the line and place a new one.

After a few hours in the E.R, the IV team was finally able to get the line repaired, but when they tried to draw blood back from the line to see if it worked, they couldn't get anything out, which meant it was indeed clotted. At that point, they tried putting TPA (a substance that dissolves clots) through the line in three rounds. Since each round of TPA takes an hour, it meant three more agonizing hours of waiting. Unfortunately none of the attempts cleared the clot, so we ended up having to be admitted and a line replacement surgery was scheduled for the following day.

Since we already had her g-tube placement & liver biopsy surgeries scheduled for the end of the month, we asked them if they could just go ahead and do those surgeries at the same time as this one so we wouldn't have to come back and put Carly through this all again. They okay-ed it with Carly's doctor and all three surgeries were scheduled for 3pm the following day.

The surgeries lasted about 3 hours. This picture shows what they did. They pulled out the clotted central line and placed a new line (the purple line) in a new spot. We asked the surgeon if he could use a stronger line this time to hopefully prevent any future breaks. We have been so fed up with how weak and poorly designed the first line (Cook 3.0 Broviac) has been, so our doctor recommended the surgeon place a super sturdy one called a Power Line. Then they did a liver biopsy and poked three little holes in her abdomen for that. We're still waiting for the results on that. Then they placed a g-tube, which we'll use to start running continuous feeds directly into her stomach at night to hopefully help fatten her up so she can get off the TPN more quickly.


We can also use the g-tube to give her meds, which I'm way pumped about because she hates taking them by mouth.

After the surgery she was miserable! Even though she was on pain meds, she was still in so much pain and just moaned and cried in a squeaky little voice (being intubated for the surgery caused her to lose her voice). All she wanted was to be held by her mama, which I was more than honored to do. I snuggled her up against my chest and rocked her the majority of the night after surgery because if I tried to lay her down in her bed, she would start crying out in pain and misery. Getting next to no sleep was hard on my body, but having that time alone in the hospital with her for those five days was a really special experience for me. On several occasions as I held her in the midst of her pain and agony, she looked directly up at me and locked eyes with me for the longest time. As she looked at me, it's as if I could feel her little spirit saying, "Thank you for giving up your life to be my mommy. Thank you for giving up your life to be here for me." We had several very tender and special moments like that during her stay that I will cherish forever.


During the five days Carly was in the hospital, she had lots of fun visitors stop by to see her.

When she was feeling a little better we were able to take her down to the play room where she played house with Uncle Ike, Aunt Amy, Bryson & Lilly.


Carly was fascinated by this mirror in the playroom and kept giving herself kisses...


It was so cute!


She couldn't play for very long because it tired her right out!


She also got to go on several walks outside where she loved watching and listening to this waterfall.

Before we got to go home yesterday, we were trained on how to care for and use her new g-tube. A nurse came over last night to teach us how to hook up and use the feeding pump, which we have set up by her crib.

The plan is that she'll continue to be on TPN for 21 hours a day. During the day, we'll continue to feed her bottles every 3 hours and solids as she'll take them. Then at night from 8pm to 8am we'll hook up the feeding tube and have it run through the night. It will pump baby formula into her tummy all night, which will hopefully give her the added calories she needs to start gaining weight more quickly so she can eventually get off the TPN.

The cute child-life specialist at the hospital sent home this little doll with a g-tube that Lilly has enjoyed playing with. She pulls it out an mimics me as I care for Carly's g-tube.

Also, something pretty amazing happened right after we brought Carly home from the hospital. We put her down on the floor to play and instead of scooting around on her tummy like she did before her surgery, she got right up on her hands and knees and started crawling for the very first time! I think her tummy was still hurting her enough from her surgeries that she realized she'd have to crawl if she wanted to get anywhere without pain. So apparently all you need to do to get a baby to finally start crawling is give them a g-tube...ha! Who knew! Check out her mad new crawling skills:


I often look at Carly in amazement. Almost a year ago her surgeon came out of the operating room and said to us, "I am so, so, so sorry. It doesn't look good. It's highly unlikely she'll make it. We've done all we can do." But now look at her! She is such a determined little girl and doesn't let anything stop her! Premature birth...nope! Gastroschisis...no way! Necrotizing Enterocolitis...nah! Short bowel syndrome...never! Central line and g-tube surgery...absolutely not! This girl is a fighter through and through!

We love you Carly! Keep rockin' on!

Favorite quote this week:

"God gives his toughest battles to his strongest soldiers."

Life rules!

9.27.2015

11 Months Old


This little ray of sunshine is 11 months old! She is still hovering right under 13 pounds and weighs 12 pounds 15 1/2 ounces. She has been eating so much better lately and eats up to 2 ounces per bottle (every 3 hours, 7 times a day) as well as some solids. Two ounces probably doesn't sound like much, but for her it's awesome! Although she's eating much, much better, it's still just not enough to help her gain enough weight even with TPN, so she will be going in for surgery in a few weeks to have a G-tube placed in her tummy. The G-tube will allow us to feed her whatever she doesn't end up eating by mouth through the tube so she'll always get the full amount given regardless of how much she eats by mouth. She is still off the lipids/fats because her liver enzymes have remained elevated, so that's another reason why it's been difficult for her put on weight lately. Hopefully the extra help from the G-tube feedings will help her gain the weight she needs to someday get off the TPN.

At the ultrasound for her liver and gallbladder everything looked okay except that they found some enlarged nodes on her bile ducts. Her doctor suspected an issue with her bile ducts, so this confirms there is something going on there. He has ordered a liver biopsy that will take place the same time the G-tube is placed and hopefully that will help determine exactly what is causing her elevated liver enzymes, her jaundice, her crazy itchy legs, and her pale yellow poop.

She also had a swallow study done the same day of the ultrasound and she swallows like a champ, so yay for good news there.

At the time of her G-tube surgery, they will also be doing a test to measure the current length of her small intestine. When she was released from the hospital back in January it measured at 31.5 cm, so the hope is that it will have grown some. The longer it grows, the more surface area she has to absorb calories & nutrients and the greater her chance of someday getting off TPN, so we are crossing our fingers it has grown some. Regardless of any growth, she will most likely need a bowel lengthening surgery before she'll be able to be taken off the TPN. But as always, only time will tell.



This is Carly's nurse that visits us every other week (sometimes weekly) to draw Carly's labs, weigh her and to test her blood sugar. Carly has been having issues with her blood sugar dropping to really low levels during and while she's off TPN, so he taught us this month how to use a glucose meter so we can keep tabs on her glucose levels.


Although she has a lot going on with her little body health-wise, this little girl doesn't let it stop her! She is totally on the move and is army crawling everywhere. She isn't quite crawling yet, but will get up on her hands and knees and rock back and forth. When she's moving around, we have to keep a close eye on her because of her line. She army crawls to as far as the line will let her go and then we move the backpack next to her and she'll take right off again.

I took this little clip of her while she was unhooked from her TPN the other day to show you her killer moves...

I found the cute mini backpack you see in the pic here and I'm so in love with it! I was excited to find a backpack actually small enough to fit on her back so that once she starts walking she'll be able to carry around her own TPN.

 Carly LOVES to go on walks around the neighborhood. Lilly loves to push her.


This is something I've been meaning to share on here for a couple of months. This is an all about me poster that Bryson created at the end of 2nd grade. I love that he drew Carly attached to her little back pack and especially loved his one wish. He is such a sweet little boy and prays for her to get better every day.

We all do.

I am so beyond grateful for the opportunity to be this little girls mother. She has brought such a special spirit into our home. Yes, she is adopted and not mine by blood, but she is in every way my daughter by spirit and through love. I needed to be this girls mother. I needed to know her special spirit. I needed to be changed by her. I needed to learn the things that only she could teach me. She is such a blessing and I love every piece (& missing piece) of her.

Favorite quote this week:

"Sometimes doing the most important thing eternally – doesn’t look like you are doing anything noticeably."



Life rules!
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